There are very few moments in my life that have left me speechless. Today alone I must have had a dozen. I asked for your help finding answers for Ella, and man did you all rise to the challenge. Over four hundred people read my blog today. That’s insane! You guys are the truly the best!

From the second I woke up I had text messages on my phone, messages in my inbox, and posts on social media. You not only shared my post, you gave me names of other people who could help, phone numbers of moms who could offer support, and contacts for doctors who have done amazing things in the lives of people you know.

Each conversation I had today restored my belief that it’s not a matter of if we will discover what is going on with Ella, but rather when. Never once was there judgement or questioning and the uplifting words of support still have my eyes filled with tears. Our journey with Ella has been a long one, and not always roses and sunshine. In my darkest hour I felt alone and didn’t want to burden others with our struggles. You clearly showed me today that we aren’t, nor ever will be, alone.

So many friends from high school and beyond, whom I haven’t spoken to in years, sent personal messages of support today. No words could possibly convey how much it all meant. Gratitude is what I have to offer, and a promise that I will pay your kindness forward.

I am sure you are all anxiously waiting for an Ella update. No episodes today but Ella was in RARE form. I did speak with the scheduler at Columbia who informed me that Ella’s case was not considered an emergency and they would call back to schedule her EEG in July. Um, nope. Try again. Directly after that call I reached back out to her neurologist who informed me that she did put in an urgent request and would call over to clear things up. Tonight I heard back that additional clinical notes needed to be submitted and we should be good to go for next week. I will call tomorrow to get a date.

In the meantime, I reached out to her pediatrician because my gut was telling me something was off with her blood sugar. My gut isn’t always right so I wanted to run it by the doc. He didn’t seem to think it was that crazy of an idea and advised me to check her blood sugar in the morning, and after any episodes for a comparison. He wasn’t willing to send us for a blood work due to covid, but assured me I could handle this on my own. A dear friend came through for me and brought over some testing supplies. Love her for doing that. So, tomorrow morning I test her blood and see what’s going on. One more thing I can check off the list if her blood sugar levels are normal. Can’t leave any stone unturned.

I promise to keep everyone updated, as requested, and once again appreciate all the love and prayers. Ella is one lucky little lady to have you all in her corner. Steve and I can’t thank you enough.

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