It will be a week tomorrow since Ella was rushed to the hospital unresponsive, and I may have gotten maybe a total of twenty fours hours of sleep since then. Everyone tells you to take care of yourself, but how can one do that when you are constantly worried about your sick child? Looking back it feels like the week flew by, but at the time the seconds felt like minutes.

Today exhaustion set in. The kind that hits you without warning and makes you feel like if you could just find a place to rest your head, you could sleep for hours. I have been struggling to keep my eyes open all day, and sitting in the hot sun didn’t make it any easier.

For that reason, tonight’s post is going to be shorter than most. Ella had an okay day. She woke up early and was screaming when I went in to get her. I keep reassuring myself, and her, that she is going through so much and it’s okay to be unsure. She is feeling some type of new way and is not quite sure how to deal with that yet. I can not imagine how scary is much feel for her.

The frequent and abnormal movements for Ella continue. Today she was also spitting more and grinding her teeth non stop. Her legs and arms were swinging around and her position of choice laying down was consistently her side, all day long. I also noticed today that she was sitting up a lot straighter than usual and still standing with ease.

We spent a huge part of our day in Jersey with Danielle and her girls. CJ was in the pool almost the entire visit and Ella and Jack were hanging back with the adults. Dani was with us too! Ella played with water balloons, hung out with Kristen, took a nap and had fun watching what was going on around her. We enjoyed a nice dinner in the Garden State before packing the kiddos up and heading home.

A heartfelt thank you goes out to Danielle for welcoming us with open arms today. It’s been a tough week, to say the least, and I know we all felt better getting out of the house for a few hours. I am sure Jack was starting to wonder if there was really life beyond our doors.

The plan tonight is to catch up on some much needed sleep. I did get a few hours in before positing and plan on getting in a few more before I have to be up to give Ella her medicine. Tomorrow is our first day since Ella got home without Dani. I will need all the energy I can get.

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