It’s been a hot minute since I have hopped on with any updates, so I figured it was time. I swear I tell myself every day I am going to post something and then my pillow calls my name and game over.
Things at Ella’s school are improving. We were able to get her some new therapists, her stroller finally arrived, and her teacher seems to be exceptional. All good things. The wait times for exiting the bus are still over 30 minutes each day and the nurse and I have had “words” already. As I have said from the beginning, communication in that building is worse than sucky. Every time you ask a question five different people will give you five different answers. Sadly my expectations in that department are low, so it minimizes disappointment. This mama bear isn’t backing down. The sooner they realize that, the better off we will all be.
This week Ella has been having some serious episodes at school. They are lasting longer and looking different than what we have seen at home. Neuro doesn’t seem too concerned and she thinks Ella is on the right dose of medicine. I don’t share the same thoughts, but I am clearly not a medical professional. That being said, I did ask for more testing or perhaps a rush on her MRI. We agreed to wait things out over the weekend, track any episodes, and proceed from there. I am baffled as to why she is only having these types of episodes at school, and why things at home seem to have improved. I can’t help but think there might be a trigger!
CJ is back into the swing of things with his hybrid model of learning. At first he wasn’t loving it like he used to because the kids who attend on his cohort day aren’t his friends. We encouraged him to make new friends and he seems to be doing much better. He still complains about the mask but admits he would rather wear it than be online every day. At home days are still a battle. It’s a work in progress.
Jack is same old Jack. He’s exhausting and entertaining all at the same time. We recently took a trip to Walmart where on multiple occasions he tried to get himself out of the stroller. My one attempt at the chest straps resulted in a full on screaming meltdown so I aborted that mission and did my best to keep him secure. He’s so damn strong. This month he also qualified for two days a week of speech therapy with early intervention. That started Wednesday. It’s our third go with these services. I am feeling like a pro now. I do believe he chooses not to talk because everything he needs, and doesn’t, is at his fingertips. Time for some tough love, and to find him some motivation.
In true Zurlnick fashion, there is never a dull moment here. Tuesday I go in for my partial hysterectomy. After Jack was born I had some complications, and after many attempts to correct them this procedure/surgery was my last resort. It’s being done laparoscopically and the doc is mandating an overnight stay for me. I am sure there will be pain and I know there will be restrictions, but I am looking forward to feeling better. My mother-in-law is coming to take care of the family, god bless her. I am certain we will all be well taken care of. I am looking forward to some rest. That is a thing, right?
The car search has been put on hold due to a possible developing situations. I wasn’t quite ready to part with the Highlander yet anyway. I have been taking the truck more for some extra space and I know Steve is loving that. By early 2021 I expect to be riding around in a new automobile. That gives me plenty of time to look and change my mind 900 times.
I hope this post finds you all well! To my teacher friends, and there are many, hang in there. You got this! To everyone else, stay safe!
I am still posting in my IG stories so head over there to follow the family for our latest updates. Follow us on IG at
Change in routine = stress, stress can induce seizures. Or maybe you need a small nanny can for your stroller to see what’s going on. Maybe they think that something that isn’t a seizure is one?
I hope you get rest even if it’s doctor ordered and in a hospital
LikeLiked by 1 person
Agreed. I think stress is playing a part in certain things. They take her out of the stroller upon arrival, otherwise I would be all over a camera. The neurologist is insisting they are not seizures. It’s so hard to not be able to see them. I want to know what they look like.
I am certain I won’t be resting in the hospital. They love to come in and bother you all night long. I plan on resting when I get home. My MIL will make sure of that.
LikeLike