It was the response I got from dad every time I would send him a video or tell him about something amazing Ella did in school or in therapy. He said it in a tone of voice that was filled with such pride. Dad adored Ella and was in her corner cheering her on every step of the way.

The feeling was mutual. The two of them would sit forever rocking in a chair in my parents living room. She would make noises and dad would carry on a conversation with her. She grabbed his joules, as he loved to call them, and no matter how hard she pulled he never once made her stop. We would hear ouch coming from the room but his “little one” could do no wrong. She certainly had her grandpa wrapped around her little finger.

Even when dad was at his worst we would FaceTime so that Ella could talk with, and see, him. Movement was his thing with her. He would wave his hands all around and make the most ridiculous noises. She would crack up. Her smile made him smile, and when she really got giggling dad would light up. While she can’t tell me yet, I know that she misses him. I also know he isn’t far from her side.

Before we got to the funeral home to make dads arrangements, mom told me that she wanted to include a donation in his obituary. Dad had a soft spot for Ella, and watched first hand how hard we have to fight to get her what she needs. He knew how much money we have put out of pocket and how gracious people have been in donating times and resources.

We always talked about paying it forward. Dad believed in that. If you put goodness out into the universe, you will get goodness in return. We talked about one day possibly starting a foundation in Ella’s name and being able to help better the lives of other special needs kiddos.

The donation part was easy. Dad would have wanted to be able to give money to children like Ella. To contribute funds to children whose families can’t afford equipment that will be beneficial to their treatment plans, to help pay for therapies insurance might not cover, or to provide any other support that might be needed. The struggles are real for these families and we know that all too well.

Ella was born to set the world on fire and while we know the incredible role she has played in our family, we would certainly like to be able to help out as many other families as we possible can. It won’t happen overnight but we are here for the ride! Who better to lead the way than dad?

Thank you to everyone who has already donated in dads name. I will leave the donation information below for all those who have been asking.

Checks can be made to:

Courtney Zurlnick c/o Ella Zurlnick

P.O. Box 216

New Milford, NY 10959

Don’t forget to also follow our journey on IG @

https://www.instagram.com/zurlnick_five