Living in a world full of constant chaos and uncertainty, it is easy to forget to pause and fully appreciate the people who deserve it most. I make a conscious effort to pour positive affirmations into the boys and Ella, but the truth is, I don’t always do the same for Steve. Too often, I fall short in letting him know just how much I value his everyday grind.
Steve often puts in more than forty hours a week, with a long commute and mornings that begin before dawn. We don’t often talk about work, and somehow that works best for us. What I do know is that when he walks through the door, he’s worn down, but never checked out. He comes home tired and still gives the kids his best. Whether it’s playing football with CJ, chasing Jack around, or sitting with Ella to make sure that she finishes her dinner and gets her meds. When his head hits the pillow he’s asleep in seconds and I am constantly telling him how jealous I am of that life skill.
I have witnessed countless families with special needs children come apart under the weight of a diagnosis. The frustration that can come with it is often directed at the very adults who are expected to handle it best. Blame is exchanged, and in moments of extreme stress, irreversible words are said. We carry heavy emotions that surface as intense reactions. We have intrusive thoughts, endless questions, and constant worry about what lies ahead. All the while, we try to stay grounded in the present. As time marches on our identity quietly shifts, becoming one with the child who will require lifelong care.
Although my role in our family matters deeply, Steve is the real MVP. He never once says no to laying with Ella when she struggles to fall asleep. He bathes Jack and puts him to bed almost every night, and he shows up endlessly for CJ, listening to every sports story and stat. His love for our children is unwavering, and their happiness always takes priority over his own.
CJ and I always tease that Steve only knows how to show one emotion. The truth is, if you really know him, you can read him like a book.
These past few months have challenged us in ways we have never experienced before. Our plates were already full, and somehow a few more bricks got stacked on top. There are days we are running on fumes, days when quitting feels easier than pushing through. And yet, in the middle of all of it, we keep choosing to show up. To show for our family, and for each other.
Steve isn’t perfect, but neither am I. When we stood there and said our vows, dreaming about our future, we never could have imagined it would look like this.
Walking away would be easier some days, but nothing about the life we are living is easy. People often ask how you keep a marriage strong when everything feels so heavy. My answer is always the same. Give each other grace, and remember that perfection was never part of the promise.
At the end of the day, life is better when we are together, and that’s what carries us through the chaos, and the calm.